EARCO - The Registry



The core project of EARCO is the European AATD Registry, a collaboration open to all investigators around Europe caring for patients with AATD.

 

The aim of the registry is to collect prospective, standardized, longitudinal data on a European level necessary to understand

a) the natural history of the disease,

b) the influence of risk factors,

c) other genetic determinants,

d) the role of augmentation therapy in the prognosis of the disease elements.

 

A large number of European countries are participating (see map on the right).

 

If you are interested in joining the registry, you may

a) use the contact field to send us an email to request more Information.

b) go directly to the EARCO Registry and start the process for registering.